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Jnanne
Star Contributor

LA
USA
3047 Posts

Posted - 02/12/2015 :  4:11:22 PM  Reply  Reply with Quote
Could be why they have such a great reputation? Sure hope this works out for you.

Jnanne
Silver certified
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JudyK
Star Contributor

Eau Claire, WI. 54703-1729
USA
1349 Posts

Posted - 02/13/2015 :  09:31:11 AM  Send JudyK an AOL message  Reply  Reply with Quote
I went in for the dye test this morning. Now, was that a trip and a half. It wasnt a bit painful, but when they started to take LOTS ofpictures of the back of the eye every second, the bright flash was almost overwhelming. The test took over a half hour, plus time to get set up for the IV. When all was done, I saw the Dr and he explained that the right eyes pressure of 11 was concerning, as it should have been higher and it warned of possible macular degeneration that he wanted checked out to decipher it was wet or dry version,luckily, it is the dry. This may possibly be a cause to the double vision also. He recommended I take Occulite or the Reds vitamins specifically aiming for eye health containing Lutecin. Spendie stuff! Im done now with this Dr until June. Back to my cornea specialist Feb 25 for recommended treatments to solve this. I was told by retina specialist Lasik surgery may be the recommendation. FYI, I was worried about all the testing Id been through would be covered by Medicare, so I had the clinic contact my insurance to verify payment. Like many of us, I sure didnt want to end up having an expensive procedure done, and end up paying for it myself, if it isnt on Medicares covered procedures.When I had called to check on it myself, all I got was it depended on how the procedure was coded.An answer that didnt help me in my book. Hopefully, I am getting closer to getting this corrected.
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Jnanne
Star Contributor

LA
USA
3047 Posts

Posted - 02/13/2015 :  8:27:38 PM  Reply  Reply with Quote
Sounds like good news. Sure hope I am interpreting it correctly!

Jnanne
Silver certified
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JudyK
Star Contributor

Eau Claire, WI. 54703-1729
USA
1349 Posts

Posted - 02/14/2015 :  09:24:50 AM  Send JudyK an AOL message  Reply  Reply with Quote
I think its good news just knowing this macular degeneration is only in the early stages, and IF it does advance it will be the treatable type.Like Id be looking forward to that! My x-husbands wife has macular degeneration in both eyes, and has to go in every other week for shots directly into the eye. She too, has this same specialist as I saw for these tests. She is unable to drive once the drugs wear off in between shots. Im hoping this degenerative eyesight takes its slow ole time to advance to where Id need those shots, as Im thinking about that time-no way would I do the shots, even if I survive that long. My x's wife is so limited as to what she can do already, and total blindness is on her doorstep sooner, than later. shes the same age as I, but has had this for 3 years already.
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JudyK
Star Contributor

Eau Claire, WI. 54703-1729
USA
1349 Posts

Posted - 02/25/2015 :  2:35:40 PM  Send JudyK an AOL message  Reply  Reply with Quote
Went in for the appointment with the Cornea specialist today, and now know more. Not much can be done about this. From all the testing theyve agreed that I do have thinning of the cornea. He showed me the results of the eye mapping pictures taken, and how one area of the eye was omitting more heat than other areas. He said removing the Toric contact lense may cause worse problems. Removing the Toric and replacing it with a transplant, or not replacing it, will lead to bottle thick lenses and blurred vision, plus further deterioration of the thinning cornea. Having Lasik surgery could also cause worse problems. Doctor did say he could refer me to Rochester for a second opinion, but he said the double vision shouldnt get any worse, if I can live with it. So I guess at my age, Im going to live with it as I dont see what good it would do. I mentioned there were 4 different "causes" from 6 doctors/specialists, he said thats the way it is, as they are all the cause, plus, he stated the clinic I originally went to that didnt bother contacting me again for an appointment most likely didnt have an answer either how to deal with this, so they just ignored me. At least, now I know and feel satisfied all that can be done, has been. I walked out of the exam room and got as far as the receptionists desk, when I thought why didnt they recommend glasses. So I asked the receptionist, who in turn contacted the Dr. He said Id have to see an optometrist for an eye exam...lol. so what have I been doing for the past few weeks, right? Flip-flopping from one specialist to the next, and not one said anything about glasses. I made an appointment for tomorrow morning to get my eyes tested. I havent needed glasses for anything other than to read since the cataract surgeries, so we shall see if at least that much can be taken care of.
I see MANY people have been reading my post, so it seems others have an interest since having cataract surgery. I hope we have learned to be careful as to what cataract lense we are recommended. Remember, Toric lenses cause double vision. IF you find youre having problems with your vision and are recommended a particular brand, go online and search it, find out if there have been problems in other patients before making your decision. Thank you all for your interest.
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Jnanne
Star Contributor

LA
USA
3047 Posts

Posted - 02/25/2015 :  5:44:47 PM  Reply  Reply with Quote
Judy--while it isn't the miracle answer we all hoped for, I'm glad you're finally getting respectable answers. And I hope glasses from the optometrist help resolve some of the issues and make life easier. Wish they could have done more, though...

Jnanne
Silver certified
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JudyK
Star Contributor

Eau Claire, WI. 54703-1729
USA
1349 Posts

Posted - 03/04/2015 :  06:44:13 AM  Send JudyK an AOL message  Reply  Reply with Quote
Thank you Jnanne. Im thankful the results werent worse, and with what I have I can live with. I think of how many procedures another volition member has gone through (LisaV) and am thankful my problems are nothing in comparison. My vision test was cancelled until I find out what the heck is now going on. Mayo offers online access to patients records, so I went in to see what the specialists notes were. I found in the medical report they described this as a Visual Disturbance from stroke (DVA). Not having any Dr tell me I experienced anything like this, I called the clinic and inquired. The people I talked to couldnt find any reference. I put in a call to the Dr who fitted me for hard contact lenses, and will be the same Dr who would be checking me for eyeglasses for reading, and I asked her about my having a stroke related problem. She got my records and read them, and found a mistake made when the dictation was performed. Since there were many choices, whomever entered the info accidently clicked on the wrong choice. Dr removed the mistake. Being on Medicare, I didnt want a false determination of cause, as that might reflect on higher insurance rates for the Supplemental Insurance next year.
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JudyK
Star Contributor

Eau Claire, WI. 54703-1729
USA
1349 Posts

Posted - 03/08/2015 :  09:06:10 AM  Send JudyK an AOL message  Reply  Reply with Quote
Wouldnt you know that by having that fluke mistake for a diagnosis on my medical record corrected caused the cornea specialist to contact me for more testing on Friday. And of course, this test has been performed now three times. This time the results were worse than the other two. Have you ever had the "field of vision test"? First test showed I didnt have any vision over the horizon, second test after eye surgeries, showed no vision below the horizon. This third test shows I have a little vision in both areas. Now he wants to find out WHY the big change before and after surgeries. More testing coming at the end of the month. Ihad explained to him on the first visit how Id bend over to pick tomatoes and they werent there, or where I saw them. Id have to stand up and reach out for them, and when I reached out again, they werent where my hands were. I can only imagine what all these testings are costing, and sure hope they find the answers.
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Jnanne
Star Contributor

LA
USA
3047 Posts

Posted - 03/10/2015 :  2:34:11 PM  Reply  Reply with Quote
For your sake, I hope so, too. Nothing can be more frustrating than not being able to find the tomato you can see! Sounds like there is a processing problem between where your eye sees something and where your brain tells your hand it is. Is it possible this is a kinesthesiological problem, rather than an optimological one? Could be a neurologist needs to address this along with the ophthalmologist.

Jnanne
Silver certified
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JudyK
Star Contributor

Eau Claire, WI. 54703-1729
USA
1349 Posts

Posted - 03/11/2015 :  07:48:00 AM  Send JudyK an AOL message  Reply  Reply with Quote
Its so weird Jnanne, I didnt experience a lot of these problems prior to the latest strabismus surgery. Double vision problems caused by strabismus had been corrected with prisms in my eyeglasses prior to the latest surgeries, and after the surgeries my vision was 20/20, and only reading glasses were prescribed. No problems with seeing doubles of people though.Thank god, but I had experienced ghosting which has gotten worse, that has me where I am today. As of my last two appointments a new problem began, which I explained to the Dr as a feeling of my right eye getting stuck to the outer edge, and a tugging from the inner edge of this eye to the outer edge. Who knows where that came from, but he gave me eye drops to use until the next appointment, believing it may be caused by dry eyes.
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Jnanne
Star Contributor

LA
USA
3047 Posts

Posted - 03/11/2015 :  5:53:07 PM  Reply  Reply with Quote
I wonder how many papers and studies you are generating for future research! And I hope they get this all figured out.

Jnanne
Silver certified
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JudyK
Star Contributor

Eau Claire, WI. 54703-1729
USA
1349 Posts

Posted - 03/12/2015 :  05:34:02 AM  Send JudyK an AOL message  Reply  Reply with Quote
I dont know jnanne. Im getting this feeling of what, and whom do I trust. It just seems very funny to have everything thats been done to be the "cause", and they dont know what to do about it, except order more tests. In my small brain, it sounds as though the surgeon (also a specialist) that performed my surgeries screwed up, and no one is wanting to point a finger.
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JudyK
Star Contributor

Eau Claire, WI. 54703-1729
USA
1349 Posts

Posted - 06/14/2015 :  12:37:24 PM  Send JudyK an AOL message  Reply  Reply with Quote
Im all done with testing, and have now seen 2 different optometrists. and have two different prescriptions,neither of which Im having filled. How do you like those apples? For Mayo having "specialists" I am very disappointed, because no two can agree on anything. The ONLY doctor I am seeing is the Retina specialist now, as he has determined through testings that I do have macular degeneration in both eyes, the dry one, which progresses much slower. He showed me the various pictures taken using dye, so I can see it personally. Maybe Ill be lucky and it wont go full blown for another ten yrs, at which time I could care less about my being blind. I said it before, and Ill say it again. Just because a hospital or clinic takes on the name of a big well known hospital doesnt mean youll get the same care, or better doctoring as they keep the same doctors on staff at the newly acquired hospital/clinic, and consultations/referrals, are only done if all else doesnt work.
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JuanitaJ
Star Contributor

Houston, TX
USA
1085 Posts

Posted - 06/14/2015 :  1:39:45 PM  Reply  Reply with Quote
Judy, keep a close watch on your eyes so that if there is any deterioration, you will catch it. With wet AMD, if it is caught in time, there are injections that can stop it.

My husband has wet AMD in both eyes. The one eye was not caught in time and he has a "hole" where he can't see. If he looks directly at someone, he doesn't see their face.

When the second eye started acting up, he went to a retina specialist and was able to get in on a research study. He gets his injections free of charge and they have arrested the leakage for the time being. He has his full sight.

You are right about Mayo. Just having the name doesn't mean a thing.

Juanita
MSPA Gold Certified
Happily shopping the Houston, TX area.
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JudyK
Star Contributor

Eau Claire, WI. 54703-1729
USA
1349 Posts

Posted - 06/15/2015 :  11:25:42 AM  Send JudyK an AOL message  Reply  Reply with Quote
I do go to a Retina Specialist and scheduled every six months, and also have that graph taped to the fridge to check for a change in vision. The cornea specialist told me I had the wet kind, then at my last appointment with the Retina specialist I asked him which one is it. He said its the dry, which eventually may lead to the wet variety which can be controlled with those injections into the eye, something Im not looking forward to. I can only hope this doesnt progress any too fast.
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JuanitaJ
Star Contributor

Houston, TX
USA
1085 Posts

Posted - 06/15/2015 :  12:30:43 PM  Reply  Reply with Quote
Just to put you a little at ease, my husband says the injections in the eye do not hurt. But they do sometimes cause the eye to get very red if they don't do it just right. Some doctors seem to be better at it than others.

Juanita
MSPA Gold Certified
Happily shopping the Houston, TX area.
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JudyK
Star Contributor

Eau Claire, WI. 54703-1729
USA
1349 Posts

Posted - 06/16/2015 :  5:04:48 PM  Send JudyK an AOL message  Reply  Reply with Quote
Thats what Ive heard, but the thought still doesnt appeal to me of starring at that needle coming at my eye. The kids Father's wife has the shots every two weeks in both eyes, and still gets very anxious before having them done.I can only hope this progresses VERY slowly, like 10 years, and I dont have to worry about it. By that time Ill be EIGHTY, if I should live that long, and wont consider it. Each shot is $2000 up here, and who knows what medicare will cover by then, right?
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JudyK
Star Contributor

Eau Claire, WI. 54703-1729
USA
1349 Posts

Posted - 10/21/2015 :  10:47:22 AM  Send JudyK an AOL message  Reply  Reply with Quote
I FINALLY found out what was causing the " thinning of the cornea". Would you believe, rubbing the eyes? I was advised to discontinue use of mascara, and eyeliner. Continued rubbing causes the eye to reshape, and thin out. Thats why the Dr. had suggested using the hard contact lenses, to reshape the cornea, but with the other problem I have thats been taken off the table. I feel a bit naked though, but no more itchy eyes, or the feeling Ive got a sand pile of sleepie stuff on my lashes that I need to clear off by pulling at my lids since discontinuing.
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